** Updated on November 15, 2007**

Our little Hadley Taylor Lorg was born June 30th, 2004 to Rick

and Tara Lorg. Rick is a Home Mortgage Consultant for Santa

Fe Mortgage, LLC and Tara was a school teacher before she

gave birth to Hadley.  They all attend Eagle Heights Baptist 

Church. Hadley is the apple of her Momma and Daddy's eyes;

as well as her doting grandparents.  Hadley's symptoms began

appearing slowly just before her 1st birthday.  Her symptoms

progressed quickly over the next couple of months.  She was

eventually diagnosed with Globoid Cell Leukodystrophy - 

"Krabbe's Disease" on Tuesday, September 6th, 2005.